Smiling so much, you need a new toothbrush

Smile for the camera!
Smile for the camera!

When I arrived at Hank’s apartment in Ohio, ready for our vacation together, he gave me a present. “Here,” he said, handing me a toothbrush. “I got one from my dentist last week, and he said to give you one, too!”

I’ve never met Hank’s dentist, so why would he send me a toothbrush?

The answer is my brother’s infectious enthusiasm. He’d been living in anticipation of our road trip for months, talking about it with everyone he met. It’s no surprise that his dentist would send me a bon voyage present.

Or maybe he just knew that traveling with Hank, people would see my teeth, because I’d be smiling a lot.

Hank in the Tracker
Hank in the Tracker

In the meantime, I’d been feeling apprehensive about the trip. I’d just spent three weeks not having to answer to anybody, even my husband. Now I was taking responsibility for someone who seems healthy and strong, but is actually a little fragile. Hank told me he’d recently had an epileptic seizure at night and woken on the bathroom floor in the morning. That terrified me.

Then there was the pressure from people who looked at me like I was some kind of saint. When I explained to my new friends in Summit that I couldn’t stay for the Fog Festival because I’d promised a road trip to my disabled brother, Mike said, “It takes a special person to do something like that.”

The truth is, I’m not a saint or a special person. I’m a hedonist, and I expected this trip to be fun. Some fun just takes more effort than other fun.

Finally, after all of Hank’s anticipation and my apprehension, we set out on the road.

At Canadian Customs, the traffic director in the orange vest leaned on the window for a chat.

From the passenger seat, Hank told him, “My sister is taking me to Canada because I’ve never been there.” That’s when the man realized that Hank was special, and he looked at me like I’d suddenly sprouted a halo.

“I have a special needs daughter,” he said. “I hope someday her brother and sister will take her on vacation…”

I smiled and said, “You know, it just depends on the example their parents set.”

He nodded thoughtfully. “God only gives you what you can handle.”

Two days into the trip, I realized that this sister had taken on more than she could handle. It was the most exhausting travel I’ve ever done. How could someone so slow make me run so fast?

I found myself crawling on my hands and knees, looking for a tiny dropped pill. I listened through the bathroom door for 10 minutes as he argued — out loud — with the shower curtain, trying to get it to stay inside the tub, then, exasperated, his voice now several octaves higher, he called me in to help. I unloaded our luggage, carried it to our room, and in the morning, carried it out again. Back on my hands and knees, I checked for lost items under the beds. “Is this your toothpaste?” I asked, finding it there.

As we drove across Canada and the midwest, I gave Hank a running description of the scenery he couldn’t see. To my surprise, he didn’t respond to many of the things I pointed out. I’d be describing a cute Halloween display or reading a funny sign, and he’d interrupt me and start talking about a frozen dinner he’d eaten last week.

Our worlds were out of synch — why was he always talking about the past or the future? Why couldn’t he live in the present moment with me? He was happy, but would he have been just as happy at home?

It wasn’t until after the trip was over that I understood. Hank’s brain works differently — he gathers life’s experiences, stores them up, then processes them at his own speed. He simply can’t process them on the fly.

He actually told me at one point, “I think better when I’m sleeping.”

Hank with his Odouls at Hooters
Hank with his "beer" at Hooters

A day or two after each event, he’d begin to relive it with greater and greater relish. One example of this was in Detroit. I asked him, “Hey, Hank, have you ever been to a Hooters?”

“No, but I’ll buy you dinner!” Obviously, he knew something about Hooters.

Once inside — neither of us had ever been in a Hooter’s — Hank was a lot more interested in the baseball game on the big-screen TV than in the waitresses. He ate his chicken and drank his non-alcoholic beer, and when we were done, I got a picture of him with six sexy smiling waitresses.

He did notice that their shorts were kinda short. “What do you call those again?” he asked me. “Hot pants,” I told him.

A couple of days later, he was on the phone with his friend, Juanita. “The waitresses were wearing these, um, orange, um, hot pants,” he told her. “And I got a picture with all of them!”

Hank with six new friends
Hank with six new friends

Watching him interact with people, I could see why we had to do this. Taking Hank on a road trip was like giving the gift of a smile to many people. He’s so bubbly, he makes people happy. That sort of happiness needs to go on a road trip and be spread around. Even if it wears out his driver.

When we got back to his home, Hank had finished his processing. The trip was a huge success, and he couldn’t wait to call his friends. I heard him telling them about the big storm on Lake Huron, the Ford plant, the museum, the restaurants, and the nursing home where we’d visited our aunts. He couldn’t wait to get his pictures developed, and he couldn’t decided which of his new t-shirts to wear first. He had presents to deliver, too.

A couple of days later, we got together with Steve and Carol to eat pizza and catch up on news. Carol and I went upstairs for girl talk, and Steve and Hank sat outside making guy jokes and drinking non-alcoholic beer. Eventually, the guys came bounding up the stairs with some big news.

“We’re planning a trip to Niagara Falls next year!” they told us. “We’re going to rent a minivan, so we can all go together!”

I was flabbergasted. I looked closely at Steve, who was rattling off the details of the trip they had planned. Was that a faint halo over his head?

Before I left Columbus, Hank asked me, “Am I still fun to take on vacation?”

“Absolutely!” I said, with enthusiasm. I’d caught up on my sleep (while he was at work), and now I was anticipating the future eagerly. Steve and Carol and Barry and I may all need new toothbrushes — we’ll be smiling a lot, at Niagara Falls next year.

Hank and Margaret with Sisters Mary Pat and Mary Julia
Hank and Margaret with Sisters Mary Pat and Mary Julia
Watch out! The blind guy is driving!
Watch out! The blind guy is driving!
A big bowl of strawberry ice cream - yum!
A big bowl of strawberry ice cream - yum!
Another smiling waitress
Another smiling waitress

A special trip with my Special brother – video link

If a picture is worth a thousand words, then what is a 12-minute video worth?

This one is priceless. It documents the road trip I took with my special needs brother, Hank, and his thoughts on the experience. His happiness and joy are infectious — you are guaranteed to laugh!

A special trip with my Special brother from Margaret Meps Schulte on Vimeo.

Journeyman

I like the term journeyman.  Part of it is because I like to travel, but that is really just an irrelevant bonus.  Perhaps it is because I’ve never done a formal apprenticeship program, and don’t have to worry about any unpleasant aspects of it.  But I’ve been thinking about it just the same lately.

You see, I (with Meps by my side, keeping up with me) have spent a lot of the last year doing fiberglass repairs and construction.  I didn’t have a formal master, although there are several people here in the yard who have that level of skill, and they have been generous with their advice.  As I understand it, there is a journeyman piece which is completed.  It represents a test of skill and knowledge, and marks the end of the apprenticeship period.  In fiberglass, I consider the re-finishing of two 42-foot long carbon fiber masts to be a journeyman piece.  Perhaps I am exaggerating, but only a little.

We finished that job a couple months ago before we left for Seattle, and I am finally getting back to some of that work.  And I’m realizing that this journeyman level of skill is something I have in some areas, but not in others.  For example, I’m still quite a few steps away from claiming that level of skill when painting, especially with two-part polyurethane paints.  And I doubt I can claim that level of skill as a writer either.  And as an editor, I don’t even want to get there very badly.

I think I realized this when I tried to write about two weeks of working full-out on re-finishing our masts.  It had some good information in there, and a few funny bits too.  But it went on and on (the job did too, so that was accurate).  I am sure that it would be possible to edit it into a nice (short) funny story for this website.  It would also be possible to write a big detailed piece that would be very useful for anybody about to re-finish a carbon fiber mast, and interesting to a few people, but pretty boring to the rest of you.  But I just don’t feel like slogging through the editing work, so it will stay as it is….much closer to the big long description.  The story does include a bunch of pictures, but if technical details of fiberglass work make your eyes glaze over you have been warned.  (Download my telling of our mast refinishing project (PDF format) in all its glory if you wish.)

Strangely enough, I don’t find anything negative or bad in this.  I like to know what I’m good at.  And also what I want to get better at.  And while I don’t particularly like to suck at anything, there is room for that in my world too.  There are a few thousand things I can happily leave for people who love or need those skills more than I ever will.

Canada is like a box of chocolates

Our first evening in Canada
Our first evening in Canada

Once upon a time, there were two children, a brother and a sister, who lived together in a big house. They swam in the backyard pool, watched “The Waltons” and “All in the Family,” and played games like “Sorry” and “Uno.”

The girl was small, and the boy was big. For as long as she could remember, he was over six feet tall, a gentle giant.

The little girl grew up fast, and she was astonished when her big brother did not. He was a child when she was a child, and he was a child when she was an adult.

He’s still a big kid, and he’s here with me. I’m talking about my special brother, Hank, who is traveling with me for a week. He’s now 59-going-on-10.

Sometimes, I think I must be crazy to do this. It’s like taking Forrest Gump on the cross-country trip from Rain Man. I am on call 24/7, making sure that his needs are taken care of. I want his vacation to be perfect, but I’m finding that’s at the expense of my own wishes.

For months, I looked forward to Hank’s reaction to Canada, because he’d never been to a foreign country overnight. I wondered how he would handle my impetuous way of traveling without making plans, going where the wind takes me. I wanted to give him the chance to make decisions, but how would I handle his choices?

Meanwhile, he was savoring the anticipation of the trip. Every time I talked to him on the phone, he brought it up. Where would we go? What would he pack? The day before we left, he said, “The closer it gets, the exciteder I get!”

I started him out with two choices: An eastward loop to Canada and Niagara Falls (which he’d never seen); or a drive straight north to Canada, and then south and west to Indiana to see our two aging aunts. He chose the aunts,  “Because I don’t know whether I’ll get to see them again.” Niagara Falls can wait “until the next time.” He’s already excited about “the next time.”

I realized this trip was going to be challenging when I got lost just leaving his house. The worst kind of passenger is one who can’t help you navigate but who goes “uh-oh” every time you make a u-turn. We’d only been on the road five minutes when he was going “uh-oh” and I was searching my vocabulary for words like “sheesh” and “dang,” instead of my usual choices.

He can’t fault me for my lack of direction. I suggested one morning that he go to the motel lobby for coffee. He went about 10 feet to the left. Then he came back and said, “Which way is it again?” The next time I made a u-turn, he laughed and said, “That’s OK. I get lost trying to get a cup of coffee.”

At some point, I realized that the subtleties I relish while traveling would be lost on my companion.

My first inkling was his exclamation on I-75 — in order to make the most of Hank’s vacation, I was driving on interstates instead of my favorite 2-lane roads. “Look at that!” he exclaimed. “A Wal-Mart truck!” Waving his hand at the semi I was passing, he said, proudly, “I know a Wal-Mart truck. I know a Fed Ex truck. And I know a Kroger truck.”

He may not be subtle. But he’s doing the same thing I do while traveling: Looking for similarities and differences from his own home and routine. We’re always searching for patterns.

“I’ve never seen a beach in Canada before!” he said, when we walk over the sand dunes to Lake Huron. He was comparing it to the beaches he knows in Florida. “Wait ’til I tell Joy I saw a green golf cart!” he said. Joy is the one person he knows who owns a golf cart.

He started tracking our motel room numbers. The first night, we had room 5. The second night, we had room 105. On our third night, the streak was broken with 119. So on the fourth night, as we went into the lobby, he said, “I wonder what our room number will be tonight — 5, 105 — that was so funny! Maybe we’ll get 119!”

Hank shows off some Canadian bills
Hank shows off some Canadian bills

When we bought our first meal in Canada and broke a $20, I asked him to carry the Canadian money. I handed him the change, which included several loonies and a toonie. “Where are the ones?” he asked. I pointed to the loonie. “That’s it; they don’t have dollar bills.” “That’s weird,” he said, frowning.

Later, out of the blue, he said, “You know what would be weird? It would be weird if I lived in Canada.”

I asked what his favorite thing was about Canada. “When I couldn’t get the car door open!” We’d gone to the marina in Grand Bend, but there was a storm, and the wind was blowing over 60 kph. Hank tried to get out, but he couldn’t fight his car door open against the wind. So he handed his camera to me, and I took it out to the beach for pictures. Meanwhile, as the wind buffeted the tiny Tracker, he sat inside the car, warm and toasty.

Watching the storm from the car
Watching the storm from the car

Finally, after three days in Canada, we drove back across the soaring bridge at Sarnia to Michigan. That’s when I discovered that border crossings are amazingly easy with Hank in the car. He’s so genuine, he makes the Homeland Security guys laugh out loud.

“What did you buy in Canada?” the uniformed man asked, holding our passports and peering in the driver’s window. From the passenger’s seat, Hank said, “I bought a t-shirt!” I laughed out loud and admitted that we’d also bought 10 bags of potato chips. I thought that would surely cause suspicion and a car search. But no, the man laughed. “Any alcohol or tobacco?” he asked. I chuckled at that, too. Traveling with Hank, there’s no need for alcohol or tobacco. He’s always happy.

Then we were back in Michigan, and Hank turned to me and said, “Well, I had two nights in Canada. I guess I’ve seen all that’s different about Canada.”

I can’t wait to hear his comments on Michigan and Indiana.

Meps and Hank in the indoor pool
Meps and Hank in the indoor pool
Canadian indoor pools are just like the ones in the US
Hank says Canadian indoor pools are just like the ones in the US
The big storm at Grand Bend
The big storm at Grand Bend
Seriously, we bought 10 bags of these chips!
We really did buy 10 bags of these!

It takes three

Many people have expressed concern or fear about the idea of sailing a boat out on the open water when I mention our dreams and plans to launch Flutterby and sail, mentioning places like the Mediterranean as a possible destination.

I have a stock explanation that I offer up as some form of reassurance to them:  Before there is a real disaster where lives or our floating home are at stake, it takes three bad things working together against us.  They could be bad luck, or they could be just poor judgement and preparation on our part.  This theory came from thinking about all the disaster sea stories I’ve heard, and I was always able to identify at least three things that went obviously wrong.  Almost always, one of them is just bad luck, but usually at least two of them are simply poor judgement.  Like taking inexperienced crew across the Tasman Sea, and then accidentally letting a halyard go during a storm.  Actually that was just two, and it only resulted in a great story and two crew members who will probably never sail across an ocean again–no real harm happened that time.

The reassuring part is that you have the ability to not do many stupid things.  I expect to be able to keep my stupidity list down to one at a time while sailing, requiring double bad luck to get me in real trouble.  (We’ll see how this works)

On the other hand, when driving the Squid Wagon cross country, I feel like the stakes are lower–it would probably take more to make a really dangerous situation….but let me start counting:

Squidley is an old vehicle, and some things have degraded a bit, but I just put up with them.  Like two out of four door locks that can be made to work, but don’t always work when you want them to, and in the way you want them to.  Or door seals that let some rain in once in a while.

Stupid idea #1: The fuel gauge reads correctly when the rear tank is in use, but not when the front tank is in use.  This happened a couple months ago and I figured it was easier to work around it than to fix it.

Stupid idea #2:  The batteries died once or twice overnight for no reason I could understand.  Rather than spend time and/or money chasing an (apparently) intermittent fault, we just disconnect the batteries when not using the vehicle overnight.  With battery switches it is particularly easy.  [I still don’t know if this plays into the story or not]

Bad luck #3:  Something went wrong in the alternator or voltage regulator–and the alternator was putting out enough juice to really cook one of the batteries.  Err…was this all just luck?  I drove from La Fayette, Georgia to Spartanburg, South Carolina before I had really decided I had a problem and actually tried to deal with it.

Bad luck #3, part two:  Found an auto electrical/alternator shop in Spartanburg (un-named to protect the guilty), which was at least pretty incompetent, and possibly did nothing at all.  At I’m only out $80 or so.  OK, they said they fixed the field wire shorted to ground, but the problem didn’t change.  Then they said the put in a voltage regulator, and perhaps they did.  Or maybe they just opened the field wire, so that the alternator wouldn’t overcharge my batteries.  (I’ll figure out more when I really get this fixed)

I didn’t really figure out that the fix was bad until I made it from Spartanburg to Columbia and had a fantastic lunch with a friend.  By then I was sure that the alternator wasn’t charging anything, and my batteries were slowly going down.  But I figured I could keep driving quite a while like this.

Bad judgement #4:  I’m ready to be back on the boat. I’ll try and push it and get back before I have to use my headlights (which would drain the (already low) batteries faster), and then address the problem in the boatyard with access to tools, guys to stare under my hood with me, auto parts stores, a loaner car and auto part stores.

Remember that fuel gauge that didn’t read what was in the front tank?  I looked in the manual and figured that it was a 16 gallon tank.  I figured I could probably get at least 15 out of it.  So I tried driving 173 miles on that tank.  It took 11 gallons at the next fill up.  I used the non-reading tank first so whenever I got nervous I could switch to the one that told me when it was getting low.  The next time I went 200 miles on it.  11.6 gallons.  Then 235 miles. 14.3 gallons.  By now I was getting pretty confident.

Bad judgement #5:  (Meps, I know that if you were here, you would have told me so!)  I decided to drive 250 miles on that tank.  I dunno…maybe I was getting worse mileage because I was on a high speed limit interstate and driving fast to get home before dark (See #4).  Well, now I know that the tank can get 15.9 gallons put back into it when it is completely empty.

So Squidley started slowing down, and I decided (too late) to switch tanks.  I even tried to turn the engine over while rolling forward in neutral on the shoulder.  (Yes, Meps, I really know you would have told me so now!)

For those of you lucky enough to have never run one fuel tank empty on Squidley, the process is now to crank the starting motor for a long time, to re-prime the diesel engine.  Running the starter for over 30 seconds could overheat it, so stop at that point.  I’ve found I usually have to crank the engine for 30 seconds about three times to get it started.  After switching to the non-empty tank.

See Bad luck #3, #3 part two, and Bad judgement #4.  The batteries barely had enough juice to turn the engine over once.

At this time, I hadn’t done a count, but I was reflecting on the fact that the margin for error on a road trip is greater than when crossing a large ocean in a small boat.  I was pretty sure I had hit three by then. But this was driving, not sailing, and the result is a good story, not a disaster.

At this point, I changed into dirty jeans, got out my jumper cables and hung them on the mirror (Good judgement #1), and then started looking under the hood to identify my alternator, and wondering if the shop in Spartanburg had really put anything on there.

A truck driver heading home in his personal vehicle stopped and pulled around to me, and offered assistance after a little bit.  (Good luck #2)  It took quite a while but he finally managed to get enough juice into my batteries and starter to do the required cranking.  Once I got started, we disconnected the jumper cables and I thanked him very much and headed off down the road.  He later told me that he stopped and turned around because he saw the jumper cables hanging from my mirror.

Finally I decided to stop at a truck stop in Greensboro, and fill up that empty tank.  The sun was just down, but there was still plenty of golden light.  It would be another 40 miles to Kinston, the next likely truck stop.

I’m going to stay the night here, and leave in the morning.  I may or may not need another jump start then, but if I do, it will only take 2 minutes instead of half an hour, since the fuel tanks are full and the fuel line is primed.  Sitting here and writing this rather than pushing on makes good judgement #3.  And I think the balance will make for a safe departure in the morning.

You can’t step in the same river twice

I was on the road to Alchemy, the Georgia regional Burning Man festival. Several people I had never met before told me I should go on Saturday night. I thought about it on Sunday. Monday morning I had decided to go. By Tuesday afternoon, the Squid Wagon and I were underway across North Carolina.

After a long drive on mostly two-lane roads, I ended up on I-95 heading South. Traffic wasn’t very bad and I was talking on my cell phone. (Gee, I used to hate those people…so much for moral superiority!) I had seen a couple billboards but didn’t really pay attention to them. Then I saw the giant sombrero tower. I interrupted the conversation with “Oh my god, I have to stop now.” and then made my way toward the exit. I said goodbye and then found a place to park.

About five years ago, Meps and I went to South of the Border, and found some much-needed levity. A bit over a year ago, we stopped in and got a few interesting things for Burning Man. By this time, I knew I was at the mother load of kitsch, and must stop and look for inspiration.

Some things don’t change. They still had inflatable space aliens. They still had tasteless stuff. There were still feral cats running around the property. The employees still seem jaded at all the silly kitsch surrounding them. Or maybe they never had a sense of humor anyhow? There still weren’t many other customers there.

Other things are different. The inflatable space aliens are only in three colors now; no pink ones anymore. I didn’t have anybody to point out the best goofy stuff to, and nobody was pointing it out to me. In fact, nobody was smiling or laughing there. Now I’m wondering if I was smiling enough when I was there.

I bought a couple things, then got some food, and went back on the road.

The next day I made it to Columbia. I proceeded to spend most of the day trying to find thrift stores on almost every side of the city, looking to find more costume clothing. Plus the party store. And a really cool costume shop called Hip-Wa-Zee.

But I’d been there before too. Meps and I and her father and a friend in Columbia had all spent a day driving around most of these places, looking for costume bits and other Burning Man stuff. This time when I scored, there was nobody to share it with. And this time I was getting half-lost driving around a strange town, rather than having a native take us from place to place.

So even if it was going up the same river, it was a different place this time. And, of course, the thrift shops had completely different merchandise than last time! I got some great stuff, although I still think the dragon print shirt I got last time is the best costume I’ve purchased in the entire state!

But as I continued upstream, I entered a different part of the river system, and things really started to change. This time, I wasn’t going to Nevada, I was going to Georgia. On the road to Burning Man, it started to feel like we were salmon returning from the sea, and all going upstream to the same destination at the same time. The closer you get, the more frequently you see people obviously heading in with you.

On my way in, I got lost going into and then through the last town, and finally made it to the gate of the event. And realized that I had not once seen another vehicle that I could clearly identify as going to Alchemy with me. If I had been driving to Burning Man, I wouldn’t have had any trouble guessing the last four turns because so much traffic was obviously going to the same place, and it would have been easy to follow.

Then I was in the event, and looking to the present, not the past–being part of the stream that others were walking through, and wading in myself as well.

Petite fillet

She’s petite, and she’s small, and she’s frail,
But her fish seems quite huge in the pail,
“No, this fish that you see,
“It’s not big, not to me,
“There’s no distance between head and tail.”

At our motel in Ontario, I wandered over to watch our hostess, a Taiwanese woman, cleaning a fish from Lake Saint Clair in a bucket. It seemed big to me, almost a meter long (hey, this is Canada). But she laughed, and said in broken English, “This not big fish — some fish big as I tall!”

How to parlay an evening gown into driving a tractor

I just posted the pictures of #5 on Facebook. (No, you will not see any photos of #4) If you’re on Facebook and want to find me, got to facebook.com/1meps. Barry is at facebook.com/1barry.

I came up with a little list last night, during a particularly stubborn case of insomnia. It’s my list of the five things a woman may find useful when traveling cross-country alone:

1. A credit card. This is useful for food, lodging, and fuel, which are the only things you really need to make it across this vast country. There’s a big drawback to using it for fuel, though. You swipe the card, fill the tank, and don’t actually interact with anyone. That makes me feel lonely.

2. A roll of paper towels. Since there is no gas station attendant, you need the paper towels for wiping the dipstick when you check your own oil. Better lonely than dead, I think scrubbing the sad remains of a giant bug off the windshield with my paper towel.

3. An iPod. I use this for mood modification — I put polkas on it to cheer myself up, so that when I pull out of the gas station, I won’t feel lonely on the highway.

4. A black lace bra. Unseen by others, this is a secret confidence-building item. Once I have cheered myself up, I wear it into a rowdy midwest bar under a flannel shirt with jeans and sneakers.

5. An orange satin backless evening gown. This is the ultimate way to combat loneliness. Once you are brave enough to interact with the people in the rowdy midwest bar, you accept a dare that you won’t wear an evening gown into the bar. Everyone in the bar knows how tiny your car is, and assumes that you are joking about carrying an evening gown. One quick circuit of the room in that dress and you can pretty much get what you want. Specifically, I have always wanted to drive a tractor, so that is my goal for the exercise.

If all goes well, there may be a photo of #5 tonight. That’s more likely, and more interesting, than any photos of #1 thru 4.

Chock-full of dial tone

I was feeling quite lost and alone,
“I can’t talk to my people,” I moan,
But then to my surprise,
When I look with my eyes,
I discover a free telephone.

I was sitting on the north side of the Coffee Cup, a busy truck stop along I-29 and US 12. For $1.47, I could drink coffee and use the internet for a couple of hours. But I needed to make plans with my brother, and I missed hearing Barry’s voice.

I tried the pay phone that was next to my booth, but it didn’t work. I went back to town, frustrated.

The next day, I went back to the Coffee Cup and asked if they knew what was wrong with the pay phone. An employee said I’d have to ask the manager. She led me around to the manager’s office on the south side, and there was a whole row of booths with free telephones. Woo hoo!